THANK YOU JUST ISN'T ENOUGH !!

SOCIAL - MAY 23, 09
Thank you just isn't enough for the social that was held in honor of Justin.

We are forever grateful to ALL of you: to family and friends from far and near, co-workers, our 2 hockey families, neighbors, businesses and even complete strangers.
Words cannot express our gratitude to each and every one of you.
You all so generously gave up a piece of your oh so precious time and resources and your hard earned money to partake in that wonderful evening.

Who said that neighbors don’t help each other out anymore?
Who says that this world is becoming more selfish? Who said people are self-centered? That WHO sure wasn’t standing in that arena amongst 1,000 plus people who contradicted these statements!

There was an energy that evening that was overflowing with enthusiasm, caring, love and above all community spirit. It is truly overwhelming!

We want to thank everyone who put time in working on this benefit, from the volunteers , from the individuals, companies, and corporations that donated wonderful items for the silent auction, to those that came to participate in the auction and donate to the cause.
There have been so many people who have shown support for our family so we apologize if we have missed anyone.

One of the highlights of the night was seeing the look on Justin's face and the excitement in his being when he was surprised with a signed "Scott Niedermayer" hockey jersey. To Anthony, Steve and of course, Scott - a VERY SPECIAL THANK YOU for making this happen!! I don't thing he has wiped off the grin off of his face since. Seeing him being a happy teenager is the most beautiful gift you could have given this Mama & Papa Bear!! Justin will forever admire that jersey! You truly have made one of his dreams come true.
Do you think he was surprised??

The look on his face says it all!!

Justin would like to apologize to those he did not recognize at the social. Because of his poor eyesight and for the lighting in the arena and the loud music, he didn't recognize everyone that talked to him.

If you noticed, Justin didn't wear a face mask at the social. Cancer Care told us that it wasn't necessary for him to wear a mask as long as he used a hand sanitizer often for his immune system was still very good.

Mama & Papa Bear would like to also apologize for not being able to visit with everyone. There were sooooo many people in attendance. It truly was overwhelming!!

With your generousity we have started purchasing some much needed visual aids for Justin. One of the tools we have purchased is a CCTV - a Clear View desktop video magnification system. This piece of equipment provides 2 x's to 50 x's magnification of texts, objects and pictures.

Here are some pictures of Justin having a good look at his graduation picture for the first time with the CCTV.

We are in debt to all of you who have reached out to our family in every form of support that has come our way. Your love and compassion help us overcome the obstacle we are facing.
Love,
Mama & Papa Bear & baby Bears too! xoxo

We leave you with social pics. enjoy!
The HUGE silent auction

A trip for 2 to Churchill a patio set

The MANY people in attendance

"TEAM JUS " T-Shirts made for the social (still available for sale)

CANCER CARE - 24th APRIL

- Justin's tumor is suggestive of gliomatosis cerebri

- pathology at local hospital & Mayo Clinic consistent

- very rare & non-curable type of tumor

- not many clinical reports (research) on this type of tumor in North America because of its' rarity

- radiation is very doubtful for now because of where the tumor is located on the brain; would cause concentration problems and character changes

- chemotherapy in pill form; most people react quite well with the chemo pills; side effects include nausea, fatigue, low white blood counts and platelet counts therefore Justin can not get a cold, flu, fever, watch for bruising and bleeding

- blood work needs to be done once a week to check blood counts & platelet counts

- Justin started chemo pills on the 29th of april and is reacting well; no sickness so far; just very tired; 21 days on chemo pills - 7 days off; 21 days on - 7 days off and so on for a very long time

- LIFE EXPECTANCY? because of the lack of research on this type of tumor, no time line is given. Do your own research; prognosis is usually very poor. He is young; with God's helping hands, your prayers and the chemotherapy maybe Justin will be able fight this thing off and beat the odds. That's all we can do for now and take it one day at a time!

- an MRI will be done every 3 months to see IF chemo is working and to see if it is spreading to other areas of Jus' brain

- Justin was told to lead as normal a life as possible...

FASHION SHOW - 26th APRIL

- Jus had a blast. He spent many hours at the school trying to help and practicing.

His graduating class should be very proud of themselves; they did FANTASTIC!!

The last runway walk was the Moore's store. A bunch of very handsome young fellas walked out wearing black tuxedos with sunglasses...the lights went bright and the music louder and low and behold our Justin walked out wearing a white tuxedo...Mama Bear couldn't stop crying. It was an amazing sight!! He was so happy & so proud!!

NEUR-OPHTHALMOLOGIST - EYES - 30 April
- hopeful for potential recovery of the eyesight on the right side; left side "dicey"
- residual swelling but definitely has gone down
- Justin wanted to know if he will ever drive again. Her answer, " Oh my friend; that will be dicey. You will need to become a millionaire and have yourself a chauffeur to drive you around like the stars." Justin's reply, " I already have a poor man's chauffeur; my Mom!" Hee! Hee!

VISITS:
Please refrain from visiting if you have a fever, cold, flu-like symptoms.
Very shortly Justin's immune system will be nil. He won't have his army fighting off germs and bacteria. We have a bottle of hand sanitizer at the door for ALL visitors to use when they visit.
Thank you for your cooperation in keeping Justin as healthy as possible.

ENGLISH PAPER
In the beginning of January before all of this mess started, Justin had to write a provincial English exam. In the exam, there was an essay to be written on Determination. Justin titled his essay "My Personal Bucket List - What I want to do before I die". We thought we'd share the ending to his essay. We quote:

"Last but not least, the one thing I want to do before I die is make sure I've lived life to it's fullest. As I hit old age I don't want to be regretting anything. I don't want to be saying, " Ah man, I should have done that." I want to be saying, "remember when I did this, that was an experience of a lifetime!"

Written by: Justin Robert - January 2009

Ironic, fate, God's hand...????

Let this be Justin's life lesson to all of us.....

Love Mama & Papa Bear & Baby Bears too!

xoxoxo

MAYO CLINIC INFO

On Tuesday (April 21) Mama Bear was getting very antsy to hear from the MAYO CLINIC. Very politely, she called the Mayo and was told by the secretary that the Pathology Report was completed and sent off to our local hospital around April 13. WHAT??? We hadn't heard anything about this yet! The secretary at Mayo also said that the hospital was to refer Justin's case to the Oncology department and in turn, they are to call us to discuss treatments.

Please note that the Pathology report could not be given directly to us. Because of legal matters and protocol, the report could only be given to a health institution; not an individual.

At this point, being antsiER, Mama Bear decided to call our local Pathology department herself to speak to the Pathologist who would have received the Mayo report and who had signed off on Justin's pathology report in January.

The local Neuro-Pathologist had this to say about the Mayo Clinic findings:

* a brain tumour.... grade 3 - astrocytoma tumour

* somewhat parallel to what they had predicted or I should say "Best Guessed"!

* it is NOT slow-growing for spreading is quite extensive throughout the tissue

* mitotic cells are present = dividing cells

* Justin's tumour is NOT a mass formation (a lump); his is spread all over the brain which is a rare presentation of this type of tumour

* treatment recommended is usually chemotherapy

* according to this local Pathologist, Justin's slides have been reviewed by the top WORLD authority on this type of tumour

Now; how much of this information is written in the Mayo Pathology Report and how much of this information is the thoughts of the local Pathologist? We are not exactly sure. Therefore, we are picking up a copy of the Mayo Pathology Report on Friday. For us to discuss these findings with the Mayo Clinic will entail a visit to Rochester.

The Brain Tumour Clinic located in Cancer Care at our local hospital has set up an appointment for Justin on Friday, April 24th. They would like to discuss drug treatments. Before we let them touch our son with any kind of treatments, we will be seeking a second opinion on drug treatments. Maybe a visit to the Mayo Clinic in Rochester, MN will be required.

At least now, we have our second opinion; we have better, concrete answers. We are hoping to have many more questions answered on Friday. The hard questions will have to be asked like:

*What is life expectancy with or without drug treatment?" *Quality of life with or without drug treatments? *What will treatments do to Justin's eyes? *Will treatments actually prolong life or make it a living hell with side effects? and so on...........

This roller-coaster ride is far from over!! In a way, it has only begun... time will tell.....

Mama & Papa Bear are having a real hard time dealing with this right now but it does not compare to what must be going on in Justin's mind. Again, he said, "This is not what I wanted to hear but at least now we know. If treatment is necessary: what choice do I have if I want to try and beat this thing. Me being depressed will not change a thing. I have to live with it."

The things our kids teach us never ceases to amaze!! STAY STRONG!! DON'T GIVE UP!! HAVE FAITH & HOPE!! To be young again and to have some of that strength and courage...

On another note, Justin has had to start taking his ASTHMA pump yesterday. (Jus has a history of mild asthma and allergies). Justin has been coughing for a few days and it seemed phleghmy. Our family doctor heard no wheezing in Jus' chest but thought it best to take his pump in case it is the start of a more serious asthma episode. It is that time of the year for allergies to kick in especially with all the flood waters, the melting snow and the buds starting to appear on trees.

MINI-SEIZURES have been occurring less often. In the last 21 days Justin has had 10 episodes. On Thursday, April 23, Jus is scheduled to see the new neurologist. The neurologist will have results from the EEG done on April 6. We will discuss his anti-seizure meds.

On a lighter note, Justin's graduating class will be having their fundraising FASHION SHOW on Sunday. Justin has had 4 clothes fittings in the last two weeks at Moores, the Football Store, Old Navy and Footlocker. It is wonderful going to these fittings and seeing him having a blast with his friends. That's what his young life should be about! He is really looking forward to this exciting experience - his modelling debut !! hee! hee!

We are trying to keep him busy and life as normal as possible. His friends come over whenever they can and they also take him out for a short while. Because Mama Bear isn't working at the moment, she tries to take him out also for walks or anything we can think of.

We will update the blog on the weekend when we meet with the neurologist and the Brain Tumour Clinic.

Keep those prayers coming! They are needed now more than ever!

Again, thank you for all of your support and again, we ask God for much needed courage & strength!

With a very heavy heart,

Love, Mama & Papa Bear & Baby Bears too!

xoxo

PS: cherish every single moment with the ones you love the most...life is so very unpredictable...

it can throw you a mean curve sometimes....

BEST GUESS...tumour ??!!??

On April 8, we saw Justin's Neuro-surgeon to discuss the findings and results from the latest MRI (April 1).

This is what we heard:
* Our BEST GUESS is that this is a benign, slow growing brain tumour.
* X-ray images diagnosis = 'gliomatosis cerebri' tumour but the pathology doesn't quite show the same thing In all of the pathology testing they did, 4 abnormal cells were found. Not 40, 400 or 4,000 but 4 !!
* The Neurosurgery team has never seen anything like this before.
* The MRI shows NO changes in the last 3 months - relatively good news.
* If this would have been a virus, the MRI would have looked different.
* Another guess would be that this has been present for the last 10 years.
* The next step will be to present Justin's case to the brain tumour clinic here,
to see if anything can be done.
They may suggest drug treatments or they may feel there is nothing to be done.
* Radiation treatments are impossible because this thing is all over the brain.
* EYESIGHT = NO changes: Whatever this thing is, Justin's eyes took a beating!
NO clue as to IF or WHEN the eyesight will get better.
Could take up to a year. We are to continue seeing the Neuro-Ophthalmologist.
* Regular CT scans and MRI's are to be done.
* Ventricles which hold our brain fluid are just fine; the shunts are working perfectly.
* Leave the anti-seizure meds as they are and we are to continue seeing the new Neurologist as he will make changes and/or regulate the medication. Justin will be on these meds for the rest of his life.
* He wants Justin in school because his brain needs to start being active. The left side brain needs to start working harder to compensate for the right side missing. Easier said than done when Justin sees everything in a blurr. We'll have to contact the school to see what and if anything can be done at this point in the semester.

ANOTHER ROLLER-COASTER RIDE !!! VERY CONFUSING!!
If you recall on Feb. 5 (3 days after the craniotomy) we were told:
* with 99.9 % surety this was not a tumour for the testing they did, did not come out positive for T-cells (tumour cells)

Obviously, this is a parents and a patients' worst nightmare.
The last thing you want to hear is that this is a BEST GUESS!
Our concerns are that how can drug treatments be prescribed if we really don't know exactly what this is?
Justin is very worried about this as well, "what would these drugs do to me if they treat for the wrong thing?". Being only 17, we can certainly understand his concerns.

Sending Justin's brain tissue slides to the Mayo Clinic is the BEST thing we could have done.
At least we'll have a second opinion and peace of mind. Maybe the States have different treatments available.
No word yet from the Mayo Clinic.

Justin has been having a great week! He hasn't been sick once and has had only 4 mini-seizures in 11 days!!
OUTINGS: Jus went to get fitted at two different places for his graduating class Fashion Show. He went out for supper with 5 ladies! (he did not enjoy this for one moment! hee! hee!). The girls took wonderful care of him! MERCI les filles!!
Justin's friends had a get-together in his honor seeing that he was doing so much better. MERCI Nic!!
All of this without Mama Bear! Mama Bear did not have to be the third (or fourth or fifth) wheel and she had had to learn to "cut the cord" once again. He did well - no mini-seizures - no sickness! YES!!
It being Easter, Jus has had the opportunity to attend a few church services without incident. Another bonus!

This Easter has been an eye opener for us. It is teaching us that life is so precious.
God gave his only son to suffer for us.
As he has, we in turn have to bear our crosses...

May your Easter be filled with joy, hope and most of all love and may you be surrounded by many family and friends.
Love,
Mama & Papa Bear and Baby Bears too!!
xoxo


Three, Two, One
(by Ruth Sherwood)
Three crosses could be seen one day
Outlined against the sky;
Three crosses put there for one use-
Three people had to die.
Two thieves were hanged upon them there-
Two thieves who both had sinned-
One unrepentant for his crime, The other sad within.
One Savior hanged between these two.
He had done nothing wrong,
But love for others hanged Him there-
His love so rich and strong.

JUSTIN'S BRAIN HAS LEFT THE COUNTRY...MAYO CLINIC

Thanks to Linda for that great quote,"Justin's brain has left the country...".

There's quite the story associated with this.
In short, Gerald's step-Mom, Rita does hair for a lady who's brother is a retired neuroligist from the Mayo Clinic in Rochester, MN. He actually called our residence on March 24th. He was able to contact a Neuro-Pathologist friend of his at the Mayo Clinic for us. This Pathologist said he would be happy to look at slides of Jus' brain tissue. Do we call this luck or is it God's way of intervening and showing us another route!! We like to think it is the latter...

So after a few weeks of relentless phone calls and writing letters to our hospital, some of Justin's brain tissue slides along with his medical records and a C.D. (with CT Scans & MRI's) are now at the Mayo Clinic in Rochester, Minnesota since Saturday, April 4th. It was quite the ordeal in obtaining these slides. Usually, slides are sent to the Mayo Clinic by a health institution or a pathologist not an individual or patient. Therefore, plenty of red tape and legal issues were involved but nothing was going to stop us from making sure this processe worked in our favor!!

And, we're happy to say it did! Now, the waiting game continues. Please keep praying for a positive diagnosis.

NEW NEUROLOGIST:

On April 1, Justin saw another neurologist. A complete neurological exam was done and he found Justin to be a bit "clumsy" on his left side. It is somewhat normal because of the 'golf ball' size of brain tissue removed from Justin's right side brain. He ordered an EEG (electroencephalography) which records the brain's spontaneous electrical activity for about 40 minutes by placing electrodes on Justin's scalp and face. This EEG was done on Monday, April 6. During the EEG Justin had a mini-seizure which was a really good thing. The doctor suspects that the mini-seizures are being triggered off deep within the right side of Justin's brain (around the area where the craniotomy was done). By doing an EEG they can see precisely the area that triggers off the mini-seizures and prescribe the proper anti-seizure meds.

SEIZURES:

From March 25 to March 30, Jus was having anywhere between 3 to 5 seizures daily. From March 31 to April 7, he has had only 2 in 8 days. AWESOME!!

SICK:

Since March 31, Jus has had a few episodes of being sick especially shortly after taking his meds. Therefore, not encouraging him to eat much. When the pills come up, then it is quite the decision to make as to what to do. Do we give more meds? Have any of the meds been absorbed in his system yet? Are we overmedicating if we administer more? If we don't give him more, will he seizure if there isn't enough in his system?....???

As of late, we have changed the way he takes his meds which seems to help the sickness. He is eating much better and in much better spirits these last few days.

PAIN:

Jus occasionally still has pain in his lower abdomen. It seems that when he has to use his core muscles, pain happens within a few hours. For example, Papa Bear took Jus & his little brother on a little excursion to the river bank. They used our friends' rhino and upon returning Justin had pain for a couple of days. Being shaken around and having to use his muscles was too much. We would really like for this pain to be confirmed as muscle pain for it is quite worrisome. Sometimes, it's to the point of him having to take some pain meds.

NAPS:

Jus still has naps in the afternoon. His body still needs to rest. He tires easily. Especially after an outing. These last few days, he seems to be getting stronger.

MRI:

An MRI was done also on April 1. Jus sees the Neuro-surgeon tomorrow (April 8th) for results and hopefully to know what the next step is until we hear from the Mayo Clinic.

Speaking of an MRI, here is a picture of Justin's brain taken from the C.D. we have from the hospital. You can see the two tubes in his brain that drain the extra fluid to his abdomen.

OUTINGS:

Justin has a busy week ahead. Doctors appointments, hockey team windup, fittings for his graduating class Fashion Show. Hopefully, he keeps doing good this week. These outings will be great for his moral.

We know you have all heard or read this a million times but THANK YOU for all of your support. We couldn't do this without you. We know we are never alone with your thoughts and prayers. Thanks to God for keeping us strong and giving Justin the courage to keep on fighting!

Love,

Mama & Papa Bear and Baby Bears too!

xoxo

Resting & doing better !!

Hi all !

We were told to put up an update for you bloggers having withdrawal again :o)

Justin is doing better these days. We've been home since the 14th of March and he is getting some much needed rest. He sleeps real well at night and usually has a nap in the afternoon.

His body is probably still trying to heal and catch up.

Up until Monday the 23rd, he was getting about 2 mini-seizures per day and for some reason they have started coming on more frequently in the last few days. For example, today by 6:30pm, he has had 4 of them already. The seizure symptoms are still the same: bad acidic & metallic taste in his mouth, stomach gets upset and the whole left side of his body tingles. The whole episode lasts about one to two minutes. Sometimes, one of the symptoms may be stronger. For example, if he has a mini-seizure immediately following a meal and the upset stomach is stronger than normal; almost guaranteed it will come up.

As for being sick or nauseated; that has been fairly under control. The newest of his anti-seizure meds has been changed to a slow-release pill allowing the meds to be released slowly in his stomach instead of being released too quickly. Since that has been changed, Justin has been a lot less nauseated. Once in a while he gets a little gagging episode.

Justin has had a few episodes of pain in his abdomen. It usually is on the lower right side of his abdomen but once in a while it still bothers him on the left side. Two evenings ago the pain hit and he had to take two Tylenol Extra-Strength to get to sleep. But these pains have also been less frequent. Justin thinks they could be muscle pain by the way it feels. After all, he has been in a hospital bed or a recliner for two months now. We need to get him moving more. Does anyone have any suggestions on how to motivate a 17 year old teenager?? There's so much nagging Mama & Papa Bear can do!!

Justin's appetite isn't great. We have to practically force him to eat three times a day. He gets a smoothie every morning therefore Mama Bear feels better that at least he is getting his fruits and yogurt in. Right now he could live on smoothies and Booster Juice products.

Boredom seems to be an issue. Justin watches t.v. but can't see what is going on. He has to listen or get someone to tell him what is going on. We have been trying to get out of the house but the weather sure hasn't been cooperating this week. Last week, we took Jus out to see his little brother's last hockey game of the season (which they lost 4-2; 2nd place. Congrats Clippers! You worked hard to get there!). We went to visit his school buddies, visited family and went to watch Papa Bear play hockey in the fun tournament. Being gone is very tiring for Justin.

He has very much appreciated the people who pay him a visit. It makes the days go by easier.

At this point, Justin still isn't able to be in school mostly because of his sight and almost half of the semester is done. We will try to do some school work at home to possibly get some credits happening. It will have to be done very slowly because Jus gets tired easily. There's no way he could handle being in school for 6 hours at a time. Justin's graduating class is putting on a fashion show on April 26th. Most of the graduating class will actually model clothes from different stores. Justin has agreed to be one of the models; something fun and positive for him to look forward to. We hear he will be dolled up in a tuxedo.... so exciting!! He's a little bit worried about falling off the stage because of his eyesight then he starts to laugh at the thought. Hee! Hee!

On March 16th, Justin had an appointment with his Neuro-Ophthalmologist. She saw no major changes in his sight except that she was a little concerned about the left eye maccula. Both optic nerves are still very swollen. Because the shunts had only been in place for 1 1/2 & 2 weeks that is not enough time to make a difference just yet. We are to see her again on April 30th.

Because we do not have any answers as to what is still slow growing in Justin's head, we feel it is time to pursue another opinion. We are considering sending some of Jus' pathology slides (brain tissue) to the Mayo Clinic in Rochester, Minnesota. We may even pay them a visit in the near future. We are seriously exploring this option.

Again, thanks to everyone for your support, your gifts (& the anonymous ones), your love and most of all your prayers! It is all greatly appreciated!

Luv to all,

Lynne, Gérald, Justin & Riel xoxoxo

Home Sweet Home! .... again; for the 4th time....

Again, it's nice to be home after spending another week in the city.

Thanks again to Auntie Nicole for blogging and keeping everyone posted.

Thanks again to Auntie Gee and family for taking such great care of Riel.

Thanks again to Pepere & Grandma Rita for allowing our extended stay in their home.

Thanks again to everyone for your thoughts, prayers and love.

Thanks again to God for giving us strength and courage.

As Nicole said previously, Justin had been having lots of abdominal pain. On Tuesday morning (10th), he was in so much pain in the lower right abdomen area that we thought for sure it was his appendix. He was screaming in pain at home and in the car. Turns out not to be appendicitis or anything else... more mysteries! It could possibly be muscle pain or bowels being twisted or your guess is good as the doctors'! The ultrasound that was done showed extra fluid in his abdomen but according to the Neuro-surgeon that is to be expected: two shunts = more fluid being drained in abdomen. He also says that the fluid is not causing Justin's pain. If the body wasn't capable of absorbing the fluid, his abdomen would be rock hard but it is "soft as a baby's bottom." Justin was also very nauseated and was sick a few times. He has no appetite.

During our stay in the city, the mini-seizures were higher again: 5-10 per day.

On Friday, all 40 or so staples were removed from his head and abdomen. He did great!! The first set of abdominal staples were deep. It was so hard to watch the nurse remove these. It was fairly painful for Jus.

Today, Sunday the 15th, Justin is doing much better. The abdomen pains are far less painful, he hasn't had any mini-seizures since friday evening and he had a great sleep in his own bed last night. His appetite is still lacking which worries us a little. We have to practically force him to eat. We believe that he doesn't want to eat for fear of being sick.

He is still fairly weak but understandibly so: 2 surgeries in one week, being very sick in between those two surgeries, after the two surgeries being sick again, and having no appetite....!!!!

He seems a bit down these last few days. So to his school friends and hockey team friends, if you have a little spare time; come for a visit or even a simple phone call would probably do him wonders right now. Thanks!!

We will try to get him out for a school visit at the end of this week. Visiting with his buddies is what he needs. We need for him to try to live as normal a life as can be until we know what the next step is.

The next steps:

March 16 - Neuro-Ophthomalogist for his eyesight

April 1 - Neurologist to control anti-seizure meds

April 3 - MRI

Week of April 6 - Neuro-surgeon for results of MRI

As a parent, being there for him is the ONLY important thing in life right now.

Mama Bear may be a little over'bear'ing and overprotective but to see your child go through such agony is sometimes unbearable but at the same time you want to be there even more to try and ease the pain and the worries.

Here is a little poem that summarizes Mama Bear's feelings. Mama Bear found this in a photo album last week. Mama Bear had placed it by Justin's baby picture 17 years ago shortly after his birth. Here goes:

My Child, My Life

Anonymous

Today is a beautiful day because I am here with you.

I look at you and marvel at the miracle of a child.

I find it hard to express in words exactly how much you mean to me.

I LOVE YOU

You are the best of my life because you are a product of me.

I can love you, protect you and guide you,

but I can never possess you.

YOU HAVE POSSESSED ME

You will always be my shining star.

For each moment I'm down you lift me up.

I will laugh with you, cry with you, and suffer with you.

I GAVE YOU LIFE

You are another day older.

I am another day younger.

You have shown to me the meaning of life.

I shall repay you until the day I die.

MY GIFT TO YOU IS GUIDANCE & ALL MY LOVE !!

We love you with all our hearts Justin & Riel !!

Mom & Dad

xoxoxo

Where They are At

Justin saw his doctor today and had all his staples taken out. The pain in his abs have subsided a bit but he was vomitting this morning. He is still feeling a bit nauseated. Basically the doctor has no idea what is causing the pain in his abs and said maybe Justin is overreacting (whatever). He thinks that (maybe) he is just overly sensitive. The doctor said he should go out and get some excersice and eat a couple of Big Macs (I'm thinking YUCK especially when you are feeling nauseated).

So Mom and Dad are still in the dark about everything. Justin is scheduled for an MRI in the beginning of April and hopefully they will be able to get some answers. They will be staying one more night at Rita and Pepere Louis's and hopefully will be able to feel more comfortable about going home.

Nicole

Ultrasound Update

Justin had an okay night. They had the ultrasound and everything came back negative. There is reief that nothing is wrong with the organs but are so baffled why he continues to have pain. "Yesterday the pain was on his right side but now it is on his left. He can't walk far without severe pain and has started having mini-seizures again.

They have left messages for Justin's regular doctor and are waiting to hear back. Lynne and Justin will stay at Pepere and Rita's as Gerald has to work later today. She says she might stay a few days just in case they have to rush him back to the hospital.

Nicole

Tuesday Update

Justin, along with mom and dad are at Rita and Louis's. Justin had blood and urine tests and there was a reading of high enzymes. So they are further inspecting the gallbladder and liver. Tomorrow at 7:15 am he will have an ultrasound done at the Victoria Hospital.

They will stay in Wpg and Lynne will only let Justin up to pee. He is to stay put in the recliner and relax. It seems when he starts moving around he is in alot of pain.

Lynne wants everyone to continue praying for Justin. They are so tired of all this and would like to put a stop to the crazy roller coaster ride. In fact, she would like someone to press the stop button for them so they can get off. If only we had the power to do this!

Nicole